So, I haven't updated this thing in several months. I guess that's a good thing. Over the rest of the summer I really wasn't that symptomatic. Oh, there were days, but not as many.
I'm a member of the marching band at my university. Band camp was in mid August and consisted of 5 days of intense marching and playing. During 2007 at band camp I had a LOT of problems. I'd have to sit out entire practice sessions due to symptoms flares. This is was before I discovered the wonders of compression tights. This year to band camp I didn't have to sit out at all. There were practices where I'd have to lie down and stick my legs up in the air to get the blood out, but that was the extent of it. Performing in band really isn't an issue with me. As long as I'm continuously moving I don't have a lot of POTS problems. Standing in one place for a period of time is what gets me. So practice, especially drill setting days, are the worst for me. Thankfully my class schedule has it to where I miss the days that we normally set drill, so I just learn it as I go along the following day.
If you're interested in seeing what we as a band do, just go to youtube and look up "Pitt Band." Or you can check out of this nifty video that a fan shot of our latest halftime show, which was Guitar Hero (the song is "Through the Fire and Flames" by Dragonforce:
Lately I've been having cyclical stomach problems. They seem to get worse just before my time of the month and subside afterwards. I went to a gastroenterologist a few weeks ago to inquire about this. The doctor was a royal douchebag and was belittling my symptoms. I was this close to up and walking out of the appointment and calling him a douchebag. Towards the end of the appointment he seemed to attempting to redeam himself but not very well. A blood test indicated to that I had a slightly high liver enzyme which indicated fat in my liver, so I went in for an ultrasound the following week. The ultrasound was clean, so I guess the liver enzyme was a fluke.
The past two weeks I've been sick in one capacity or another. I finally got over everything on Wednesday. I had a cold followed by a stomach bug. The stomach bug caused me to miss an exam for a class so I had to go to student health to get a doctor's note so I can make up said exam. The doctor I saw has the most impressive bedside manner that I've seen in a long time. When he asked me for my medications I listed them off. He asked me what I took the atenolol for and I told him POTS (but in long form). He KNEW WHAT I WAS TALKING ABOUT!!! Granted, he wasn't an expert on it but he KNEW!! I seriously wanted to reach out and hug him. With all my bad crazy doctor experiences, it made my day.
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5 comments:
Hi. Regarding your tummy problems. I experience exactly the same problems. I have found that diet really helps. If you want to find out what has helped me you can look at my blog. Hope it helps.
http://lynnecampbell.blogspot.com/2008_10_01_archive.html
Hi. Regarding your tummy problems. I experience exactly the same problems. I have found that diet really helps. If you want to find out what has helped me you can look at my blog. Hope it helps.
http://lynnecampbell.blogspot.com/2008_10_01_archive.html
Sorry to hear that you've had problems with jerk doctors in the past. I'm a 29 year old woman with severe chronic back and leg pain (DDD, failed back syndrome, adhesive arachnoiditis) and I've been there with the bad doctors..luckily I am in good hands now and have been for a long time. My advice..once you find a good doctor..stick with him or her as long as possible. Also, make sure you are followed by a pain management center if you aren't already. :)
Hang in there..I did college and law school dealing with pain every day and I know it isn't easy..especially when people around you don't have to worry about that kind of stuff. You seem like a really strong person though...bravo!!
Hi, I am 27 years old and was diagnosed with POTS last year. We have VERY similar lives and illnesses. WE NEED MUST chat. I have never met anyone else with POTS. Please email at ekmyers2@yahoo.com
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